Hi! Thank you for reading the Donor
Impact Report, filled with life-changing
stories made possible by YOUR support.
Your BIG heart brightens up the dark
days of being a sick kid or an overwhelmed
parent unsure where to turn for answers.
Thanks to you, we're ready to turn BIG
dreams into reality. As the only organization
in Central VA dedicated to children with
serious illnesses, we must do more to meet
the needs of this rare disease community!
We're ready to go, we're ready for the
BIG hike ahead in serving more kids and
families!
The BIG plans your generosity inspired
will ensure parents receive connection and
resources to help their families thrive and
kids have BIG fun play opportunities.
Your support led to this BIG exciting
place, and your continued dedication will
help reach the BIG goals.
Thank you for helping families care for
their sick child in BIG and small ways!
Gratefully yours,
Stephanie Becker
Executive Director
Desi’s mom Alisha first became involved
with Better2gether because her family wanted
to experience outings with other families and
gain support from other parents who share
similar journeys.
Desi's family sought multiple medical
opinions for a year and a half. The geneticist
at VCU finally diagnosed her with a rare
genetic syndrome called Cornelia de Lange
syndrome (CdLS). This syndrome typically
impacts growth, cognitive and behavioral
development, and multiple internal organs.
"I think it’s harder on the parent than on the
child. Children only understand and feel love
and support. But parents can get so busy
providing that love and support, they may not
always pay attention to their own needs."
One of the family's highlights was attending
a Better2gether Summer Bash program. “Desi
enjoyed watching the kids,” Alisha shares.
“And we appreciated having the space and
accessibility that allowed the children to
make crafts and participate in activities.”
You provided Desi's family with
strength knowing they're not alone.
You set the course!
The BIG Hike
Your support allowed Desi to meet and
play with other kids. You provided her
family with a community to lean on.